Cornelia de Lange Syndrome Foundation, Inc.
This is a nonprofit organization which is helping families, by providing lot of information about rarely known genetic disorder CDLS. Refer https://www.cdlsusa.org/what-is-cdls/. 1 in 10000 is diagnosed with CDLS. CDLS is related to overall global developmental delay of the kids ranging from physical to mental disabilities. As of now they don't have any big sponsors to sponsor the annual gathering of the foundation where in they give opportunity to family to get tother and share their stories. Share information about various new finding in CDLS. As on today they are serving 2500+ kids. Your kind donation will help in sponsoring research in finding various issues related to CDLS. 2020 conference will start from Jun-25, 2020.
https://www.cdlsusa.org/conference/
